July 3, 2013
Houlton, Maine
Contact and Information:
https://www.facebook.com/MiracleMileRace4Research
For me, DBA has blocked the path to my goal. To get there, I’ll have to fight it and one day, I will reach that goal because I didn’t give up!
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
We hope for an easier life, until then we are grateful for each day together.
For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.
Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.
Living with DBA has had its ups and downs, but with all the love and support we have gotten from our family and friends, we have been able to provide our daughter with the best life possible.
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
One comment
My son Reuben now age 12yrs, went on a supplement programme from the age of three, following a number of unsuccessful drug trials. He was on a number of supplements, but one of the main ones was a custom amino acid contai ing a high dose of Luceine. My son showed signs of improvements after 12 months and was in remission by 18 months. There was another child in the Chezch Republic also responded to Leucine around the same time. My son has not required transfusions for 6 years now and is no longer on supplements.
Comment by Michelle Grainger-Mead on June 12, 2013 at 9:49 pm
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