July 3, 2013
Houlton, Maine
Contact and Information:
https://www.facebook.com/MiracleMileRace4Research
DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.
DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
We hope for an easier life, until then we are grateful for each day together.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
One comment
My son Reuben now age 12yrs, went on a supplement programme from the age of three, following a number of unsuccessful drug trials. He was on a number of supplements, but one of the main ones was a custom amino acid contai ing a high dose of Luceine. My son showed signs of improvements after 12 months and was in remission by 18 months. There was another child in the Chezch Republic also responded to Leucine around the same time. My son has not required transfusions for 6 years now and is no longer on supplements.
Comment by Michelle Grainger-Mead on June 12, 2013 at 9:49 pm
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