July 3, 2013
Houlton, Maine
Contact and Information:
https://www.facebook.com/MiracleMileRace4Research
Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.
Thank you DBAF for being there for us as we continue on this journey.
One comment
My son Reuben now age 12yrs, went on a supplement programme from the age of three, following a number of unsuccessful drug trials. He was on a number of supplements, but one of the main ones was a custom amino acid contai ing a high dose of Luceine. My son showed signs of improvements after 12 months and was in remission by 18 months. There was another child in the Chezch Republic also responded to Leucine around the same time. My son has not required transfusions for 6 years now and is no longer on supplements.
Comment by Michelle Grainger-Mead on June 12, 2013 at 9:49 pm
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