July 3, 2013
Houlton, Maine
Contact and Information:
https://www.facebook.com/MiracleMileRace4Research
Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing
“We are only as strong as we are united, as weak as we are divided.” – JK Rowling
Please come together and help find a cure for DBA.
We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.
Some days are good, others not so good. Please help find a cure for our family.
The DBAF has been a life saver for us! They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.
One comment
My son Reuben now age 12yrs, went on a supplement programme from the age of three, following a number of unsuccessful drug trials. He was on a number of supplements, but one of the main ones was a custom amino acid contai ing a high dose of Luceine. My son showed signs of improvements after 12 months and was in remission by 18 months. There was another child in the Chezch Republic also responded to Leucine around the same time. My son has not required transfusions for 6 years now and is no longer on supplements.
Comment by Michelle Grainger-Mead on June 12, 2013 at 9:49 pm
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