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Contact: Dawn Baumgardner at dbaumgardner@dbafoundation.org or call 716.674.2818.
After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
Of all the people on earth, the Lord your God has chosen you to be his own special treasure. -Deuteronomy 7:6
Never give up on something that you can’t go a day without thinking about.
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
Future ribosomal protein researcher…he just doesn’t know it yet.
It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
