I will not let DBA define me, I will let it strengthen me.
Diana – 28 years
Irelynn – 2 years
For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.
Angus – 4 years
Our greatest inspiration!
Caitlyn – 9 years
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
Kristin – 25 years
Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.
Emmalynn – 3 years
Living with DBA has had its ups and downs, but with all the love and support we have gotten from our family and friends, we have been able to provide our daughter with the best life possible.
Finn – 5 years
Corey & Tessa Ann – 27 years & 10 months
Living everyday to fight DBA
Carole – 16 years
Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.
Natalie – 9 years
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey