It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
Pascal – 11 Years
YouKai (Stephen) – 5 years
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
Audrey – 4 years
Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.
Natalie – 9 years
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
Angus – 4 years
Our greatest inspiration!
Samnang – 3 years
After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.
Emmalynn – 3 years
Living with DBA has had its ups and downs, but with all the love and support we have gotten from our family and friends, we have been able to provide our daughter with the best life possible.
Justin – 5 years
Lane – 12 years
Same journey, different paths. Bound together by the same heartaches, triumphs, and hope for a cure. That’s DBA Family!
James Thomas – 3 years
Never give up on something that you can’t go a day without thinking about.