Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
Lily – 10 years
Brooke – 7 years
Kristin – 25 years
Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.
Lane – 12 years
Same journey, different paths. Bound together by the same heartaches, triumphs, and hope for a cure. That’s DBA Family!
Alexandre – 9 months
Kendra – 34 years
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
Abby – 6 years
DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.
Lola – 5 years
“Out of difficulties grow miracles.” – Jean de La Breyere
Maggie – 4 years
It’s not fun, but I am a tough cookie.
Elton – 2 years
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.