Keep on Keepin’ On!
Anders – 5 years
Irelynn – 2 years
For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.
Jamie – 7 years
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
Kristin – 25 years
Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.
Liam – 5 months
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
Natalie – 9 years
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey
Jim – 35 years old
Gabriel – 7 years
We hope for an easier life, until then we are grateful for each day together.
Jack – 3 years
DBA is tough, but thankfully so is Jack. Praying for a cure.
Michael & Andrew – 13 years
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.