Spotlight Stories
A Message From Dr. Vijay Sankaran
This month, the Diamond Blackfan Anemia Foundation (DBAF) received a heartfelt letter from Vijay G. Sankaran, M.D., Ph.D. Vijay is the Lodish Family Chair in the Division of Hematology/Oncology, Boston…
Read MoreClinical Trial Opportunity
We are pleased to share and update information regarding the clinical trial entitled, “Phase I/II, Open-Label Study to Determine Safety of Trifluoperazine (TFP) in Adults with Red Blood Cell Transfusion-Dependent…
Read MoreNew Information & Recommendation Regarding Increased Cancer Risks
In June 2021, a “Special Report” entitled, Colorectal cancer screening and surveillance strategy for patients with Diamond Blackfan anemia: Preliminary recommendations from the Diamond Blackfan Anemia Registry was published in…
Read MoreCOVID-19 & Vaccine Updates from the DBAR
Many thanks to the DBAR team for taking the time to answer our patients’ and families’ questions regarding COVID-19 and the vaccines. We appreciate Dr. Adrianna Vlachos and Dr. Michelle…
Read MoreDr. Adrianna Vlachos Answers Your COVID-19 Questions
On Saturday, April 11, the Diamond Blackfan Anemia Foundation (DBAF) welcomed Dr. Adrianna Vlachos, Director of the North American DBA Registry (DBAR), to address COVID-19 concerns of the DBA Community.…
Read MoreResponse to People Magazine’s Article
As the Executive Director of the Diamond Blackfan Anemia Foundation (DBAF), it is both my professional responsibility and personal passion to fulfill the DBAF’s Mission Statement: The mission of the…
Read MoreCamp Sunshine 2017 Recap
Oh… Camp Sunshine… we are so very grateful! Through the generosity and compassion of our friends at Camp Sunshine, DBA families and patients from around the world met in Casco, Maine from…
Read MoreDBAF Hosts 14th DBA International Consensus Conference in Atlanta, GA
The 14th Diamond Blackfan Anemia International Consensus Conference was a huge success. It is a privilege to continue the meeting founded and previously sponsored by Marie Arturi and the Daniella Maria…
Read MoreDBAF provides Sponsorship for Conference on Ribosome Synthesis
By: Steven R. Ellis, Ph.D. Dateline: August 21st 2015, Brussels Belgium Ding…………….that’s odd, it is 3:00AM back in the US: who would be e-mailing me now? Ah, it’s Jeff Lipton;…
Read MoreA Clinician/Researcher’s Perspective… Camp Sunshine 2015
By Vijay G. Sankaran, M.D., Ph.D. As both a pediatric hematologist caring for patients with blood disorders and a scientist working to improve our understanding of the genetic basis of…
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