The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our tenth national family retreat. This retreat will take place during the week of July 12 – 17, 2015 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine. Ground transportation is provided by Camp Sunshine to the campus. Camp Sunshine has proven to be an unforgettable experience Continue Reading »Posted in: Previous Events
The Diamond Blackfan Anemia Foundation (DBAF) and Diamond Blackfan Canada (DBAC) proudly represented DBA at the 55th American Society of Hematology (ASH) Annual Meeting and Exposition held in New Orleans, LA from Dec. 7 – 10, 2013. The event was attended by over 20,000 worldwide hematologists, researchers and other health-related professionals. Visitors to our booth received information regarding DBA clinical Continue Reading »Posted in: Misc, News, Previous Events, Spotlight Stories
8th annual Friends of DBA golf Outing Monday, September 15, 2014 Fox Meadow Country Club Medina, Ohio For more information and registration: http://www.friendsofdba.org/Posted in: Previous Events
The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our ninth national family retreat. This retreat will take place during the week of July 21 – 26, 2013 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine. Ground transportation is provided by Camp Sunshine to the campsite. Camp Sunshine has proven to be an unforgettable experience Continue Reading »Posted in: News, Previous Events, Spotlight Stories
The Diamond Blackfan Anemia Foundation (DBAF) proudly represented DBA at the 54th American Society of Hematology (ASH) Annual Meeting and Exposition held in Atlanta, GA from Dec. 8 – 11, 2012. The event was attended by over 20,000 worldwide hematologists/researchers and visitors to our booth received information regarding DBA clinical care, patient opportunities, and research. The DBAF is pleased to Continue Reading »Posted in: News, Previous Events, Spotlight Stories
Rolling for Robert in Support of DBA October 27, 2012 5:30 – 7:30pm Scooter’s Rolling Place Mississauga, Ontario Contact: Paula Bourgeois pizster27@gmail.com For more information, please click here. Thanks Bourgeoiss!Posted in: Previous Events
Jump Day for DBA October 21, 2012 1:00 – 5:00pm Jump Tupelo Tupelo, MS Contact: Victoria Boatman vjboatman@gmail.com For more information, please click here. Thank you Boatmans!Posted in: Previous Events
KJG Golf Outing October 15, 2012 9:00am Shotgun Start Black Swan Country Club Georgetown, MA Contact: Sally Thompson Gately KJGFoundation@gmail.com For more information, go to www.kjgfoundation.org Many Thanks to the Gatelys!Posted in: News, Previous Events
It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.
We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.