News
Powerful Song by Maria Mohn, DBA Mom
Maria Mohn is a Norwegian musician, pianist, and singer-songwriter; she is also a DBA mom. This powerful song was written when her son was in the hospital.
Read MoreA Message From Dr. Vijay Sankaran
This month, the Diamond Blackfan Anemia Foundation (DBAF) received a heartfelt letter from Vijay G. Sankaran, M.D., Ph.D. Vijay is the Lodish Family Chair in the Division of Hematology/Oncology, Boston…
Read MoreSenthil Bhoopalan, PhD, Receives ASH Abstract Achievement Award
Congratulations to Senthil Bhoopalan, MBBS, PhD, FAAP!! We are grateful for the work from the laboratory of Mitchell Weiss, MD, PhD, Department of Hematology chair, at St. Jude Children’s Research…
Read MoreCongratulations, Dr. Adrianna Vlachos – Expertscape World Expert in Bone Marrow Failure Disorders
Please join us as we congratulate Dr. Adrianna Vlachos, Director of the Diamond Blackfan Anemia Registry (DBAR) of North America, for being recognized as an Expertscape World Expert in Bone…
Read MoreTargeting Elevated Heme Levels to Treat a Mouse Model for Diamond-Blackfan Anemia
We love research! Another paper published! This time from our dynamic research team in Sweden led by Johan Flygare, PhD. Many thanks for their continued commitment to Diamond Blackfan Anemia…
Read MoreFDA, NIH, and 15 Private Organizations Join Forces to Increase Effective Gene Therapies for Rare Diseases
Interesting Read… FDA News Release: “The U.S. Food and Drug Administration, the National Institutes of Health, 10 pharmaceutical companies and five non-profit organizations have partnered to accelerate development of gene…
Read MoreVijay Sankaran, M.D., PhD (DBA Superhero) Wins 2021 Blavatnik Therapeutics Challenge Award
Exciting news to share! Congratulations to (DBA Superhero) Vijay Sankaran, M.D., PhD, Harvard Medical School associate professor of pediatrics at Boston Children’s Hospital for winning a 2021 Blavatnik Therapeutics Challenge…
Read MoreClinical Trial Opportunity
We are pleased to share and update information regarding the clinical trial entitled, “Phase I/II, Open-Label Study to Determine Safety of Trifluoperazine (TFP) in Adults with Red Blood Cell Transfusion-Dependent…
Read MoreLodish Receives Lifetime Achievement Award
Congratulations to Dr. Harvey Lodish! The American Society of Hematology (ASH), honored Whitehead Institute Founding Member, Harvey Lodish, Ph.D., with its Wallace H. Coulter Award for Lifetime Achievement in Hematology.…
Read MoreNew Information & Recommendation Regarding Increased Cancer Risks
In June 2021, a “Special Report” entitled, Colorectal cancer screening and surveillance strategy for patients with Diamond Blackfan anemia: Preliminary recommendations from the Diamond Blackfan Anemia Registry was published in…
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