News
DBAF Welcomes New Board Member
The DBAF is proud to welcome Jamie Dermatis to the board. Jamie officially joined the board in January 2023 and is mom to 4-year-old DBA patient, Jackson. While she is…
Read MoreTeen cancer survivor with DBA gets free Taylor Swift tickets from stranger
14-year-old teen, Hallie Barnard, was gifted free front-row tickets to the Taylor Swift concert by a family who donated them to MD Anderson Cancer Center. When asked about Taylor Swift,…
Read MorePhase 2 Bitopertin Clinical Trial
Exciting upcoming clinical trial information to share with more information to follow! The Diamond Blackfan Anemia Foundation has been working with Disc Medicine and will be working with the NIH…
Read MoreDr. Flygare To Complete Clinical Sub-Study in DBA Patients Undergoing Clinical Gene Therapy
The Diamond Blackfan Anemia Foundation, in partnership with Friends of DBAF and Diamond Blackfan Anemia Canada, has awarded $70,000 to Johan Flygare, MD, PhD of The Lund Stem Cell Centre…
Read MoreDr. Bhoopalan receives funding for preclinical study of gene therapy for DBA as well as recognition as a recipient of 2023 Scholar Awards
Congratulations to Dr. Senthil Velan Bhoopalan, MBBS, PhD, St. Jude Children’s Research Hospital! The Diamond Blackfan Anemia Foundation, along with our partners, Friends of DBAF and Diamond Blackfan Anemia Canada,…
Read MoreASH 2022
The DBAF and DBA Canada proudly increased DBA awareness among attendees at the 64th American Society of Hematology (ASH) Annual Meeting and Exposition held in New Orleans, Louisiana. The event…
Read MoreLab-grown blood given to people in world-first clinical trial
Blood that has been grown in a laboratory has been put into people in a world-first clinical trial. https://www.bbc.com/news/health-63513330.amp
Read MoreRibosome Synthesis Workshop
The 12th triennial Conference and 3rd EMBO Workshop on Ribosome Synthesis took place August 17-21 in Switzerland. The DBAF proudly supported this meeting with a $5000 sponsorship. With a focus on…
Read MoreDiamond–Blackfan Anaemia With Iron Overload: A Serious Issue
Something to add to your summer reading list is a recently published commentary from our Italian colleagues entitled, “Diamond–Blackfan anaemia with iron overload: A serious issue” https://onlinelibrary.wiley.com/doi/epdf/10.1111/bjh.18393
Read MoreAhwatukee Family Feels Blood Shortage Uncertainty
If you are able to donate blood, please consider saving a life… or three! Those on the receiving end of your selfless gift appreciate and need you. Many of our…
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