Posted on: January 14, 2019
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
News & Events
Cole – 2 years
While I know the road will not always be without struggle, we will continue to learn more through research and the determination of the amazing DBA community.
Jamie – 7 years
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
Maddy – 17 years
Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing
Dean – 11 years
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
James Thomas – 3 years
Never give up on something that you can’t go a day without thinking about.
Sam – 6 years
Future ribosomal protein researcher…he just doesn’t know it yet.
Michael & Andrew – 13 years
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
Seth – 4 years
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
YouKai (Stephen) – 5 years
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?