Oh… Camp Sunshine… we are so very grateful! Through the generosity and compassion of our friends at Camp Sunshine, DBA families and patients from around the world met in Casco, Maine from July 9-14, 2017. Our eleventh family meeting was a huge success! As presentations are received and approved by the presenters, they will be posted to our website here: https://dbafoundation.org/families/camp-sunshine/
Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
As parents it is difficult to watch our son go through so much (IVs, pokes, transfusions, ER visits, steriod side effects, tests, ect.), but the resilience and toughness Elton shows each day is what gets us through.
Thank you DBAF for being there for us as we continue on this journey.
This is Jamie…Jamie is 7 years old, from the U.K… and he has DBA…. he’s brave, he’s strong, and above all, he’s always smiling.
This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.
One comment
Just wanted to say thank you. Dawn and The Board at DBAF – you are all amazing, bringing the doctors and researchers all in to one room. The medical team and researchers gave such informative talks and taught us so much – and were great fun too!The research is getting there, we have just got to keep funding it. The Yellow Shirts and staff at camp, what wonderful humans. The children had a ball! Nancy, how you manage to get a lot of strangers in a room and before you know it its a family! Truly thankful.
Best week of our lives. xx
Comment by Eileen Rix on August 25, 2017 at 3:09 pm
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