Oh… Camp Sunshine… we are so very grateful! Through the generosity and compassion of our friends at Camp Sunshine, DBA families and patients from around the world met in Casco, Maine from July 9-14, 2017. Our eleventh family meeting was a huge success! As presentations are received and approved by the presenters, they will be posted to our website here: https://dbafoundation.org/families/camp-sunshine/
I am and always will be special. I am and always will be DBA Strong!
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
We are not the first to say this and we will not be the last, the DBAF has saved our child’s life. I cringe at the thought of what her care would be had we not met the DBAF.
This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.
“We are only as strong as we are united, as weak as we are divided.” – JK Rowling
Please come together and help find a cure for DBA.
This DBA family is the greatest group of people that I never wanted to have to know, but blessed that I do. The support from the DBA Foundation is immeasurable.
After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.
One comment
Just wanted to say thank you. Dawn and The Board at DBAF – you are all amazing, bringing the doctors and researchers all in to one room. The medical team and researchers gave such informative talks and taught us so much – and were great fun too!The research is getting there, we have just got to keep funding it. The Yellow Shirts and staff at camp, what wonderful humans. The children had a ball! Nancy, how you manage to get a lot of strangers in a room and before you know it its a family! Truly thankful.
Best week of our lives. xx
Comment by Eileen Rix on August 25, 2017 at 3:09 pm
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