Oh… Camp Sunshine… we are so very grateful! Through the generosity and compassion of our friends at Camp Sunshine, DBA families and patients from around the world met in Casco, Maine from July 9-14, 2017. Our eleventh family meeting was a huge success! As presentations are received and approved by the presenters, they will be posted to our website here: https://dbafoundation.org/families/camp-sunshine/
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
Of all the people on earth, the Lord your God has chosen you to be his own special treasure. -Deuteronomy 7:6
Some days are good, others not so good. Please help find a cure for our family.
Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.
Living with DBA has had its ups and downs, but with all the love and support we have gotten from our family and friends, we have been able to provide our daughter with the best life possible.
Thank you DBAF for being there for us as we continue on this journey.
“We are only as strong as we are united, as weak as we are divided.” – JK Rowling
Please come together and help find a cure for DBA.
Nobody is guaranteed tomorrow. Just because you have a warning doesn’t make you different than anyone else. It doesn’t make a difference in how you live each day.
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
One comment
Just wanted to say thank you. Dawn and The Board at DBAF – you are all amazing, bringing the doctors and researchers all in to one room. The medical team and researchers gave such informative talks and taught us so much – and were great fun too!The research is getting there, we have just got to keep funding it. The Yellow Shirts and staff at camp, what wonderful humans. The children had a ball! Nancy, how you manage to get a lot of strangers in a room and before you know it its a family! Truly thankful.
Best week of our lives. xx
Comment by Eileen Rix on August 25, 2017 at 3:09 pm
By submitting a comment you grant Diamond Blackfan Anemia Foundation, Inc. a perpetual license to reproduce your words and name/web site in attribution. Inappropriate and irrelevant comments will be removed at an admin’s discretion. Your email is used for verification purposes only, it will never be shared.