Oh… Camp Sunshine… we are so very grateful! Through the generosity and compassion of our friends at Camp Sunshine, DBA families and patients from around the world met in Casco, Maine from July 9-14, 2017. Our eleventh family meeting was a huge success! As presentations are received and approved by the presenters, they will be posted to our website here: https://dbafoundation.org/families/camp-sunshine/
Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.
Never give up on something that you can’t go a day without thinking about.
This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
For me, DBA has blocked the path to my goal. To get there, I’ll have to fight it and one day, I will reach that goal because I didn’t give up!
Difficulties are meant to rouse, not discourage. The human spirit is to grow strong by conflict. – William E. Channing
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
I stand DBA Strong with the help of my family, friends, and DBA friends.
One comment
Just wanted to say thank you. Dawn and The Board at DBAF – you are all amazing, bringing the doctors and researchers all in to one room. The medical team and researchers gave such informative talks and taught us so much – and were great fun too!The research is getting there, we have just got to keep funding it. The Yellow Shirts and staff at camp, what wonderful humans. The children had a ball! Nancy, how you manage to get a lot of strangers in a room and before you know it its a family! Truly thankful.
Best week of our lives. xx
Comment by Eileen Rix on August 25, 2017 at 3:09 pm
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