Oh… Camp Sunshine… we are so very grateful! Through the generosity and compassion of our friends at Camp Sunshine, DBA families and patients from around the world met in Casco, Maine from July 9-14, 2017. Our eleventh family meeting was a huge success! As presentations are received and approved by the presenters, they will be posted to our website here: https://dbafoundation.org/families/camp-sunshine/
It is the tough things I have gone through with DBA that has made me the man I am.
Never give up on something that you can’t go a day without thinking about.
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
DBA has forever changed our lives, but we will persevere until we find a cure.
We are hopeful that a cure will be discovered soon so that our son doesn’t have to endure pokes and disruptions and can feel good all the time – isn’t that what every child deserves?
After finally getting the right diagnosis, Samnang is surviving and thriving in Cambodia.
For Research, For Hope – Commited to helping find a cure for Diamond Blackfan Anemia – Give life, Donate blood.
DBA is a part of who I am… it does not define me nor will it stand in the way of my hopes and dreams.
One comment
Just wanted to say thank you. Dawn and The Board at DBAF – you are all amazing, bringing the doctors and researchers all in to one room. The medical team and researchers gave such informative talks and taught us so much – and were great fun too!The research is getting there, we have just got to keep funding it. The Yellow Shirts and staff at camp, what wonderful humans. The children had a ball! Nancy, how you manage to get a lot of strangers in a room and before you know it its a family! Truly thankful.
Best week of our lives. xx
Comment by Eileen Rix on August 25, 2017 at 3:09 pm
By submitting a comment you grant Diamond Blackfan Anemia Foundation, Inc. a perpetual license to reproduce your words and name/web site in attribution. Inappropriate and irrelevant comments will be removed at an admin’s discretion. Your email is used for verification purposes only, it will never be shared.