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DBAF Funds Another Research Project

The Diamond Blackfan Anemia Foundation is proud to support the very important work of Vijay G. Sankaran, M.D., Ph.D. of Boston Children’s Hospital. The DBAF has provided $36,000 to fund Dr. Sankaran’s research project entitled, Defining GATA1 Transcriptional Alterations in Diamond-Blackfan Anemia. In addition to his clinical responsibilities, Dr. Sankaran is an outstanding investigator and was a leader in the  Continue Reading »

Cohen Children’s Medical Center Announces Leucine Trial for Transfused DBA Patients

Dear DBA Patients and Families: We are pleased to announce the opening of: “The Use of Novel Therapies to Reconstitute Blood Cell Production and Promote Organ Performance, using Bone Marrow Failure as a Model: A Pilot, Phase II Study of the Amino Acid Leucine in the Treatment of Patients with Transfusion-Dependent Diamond Blackfan Anemia” Diamond Blackfan Anemia (DBA) is a  Continue Reading »

Miracle Mile: Makenna and Maggie’s Race for Research (to benefit DBAF and CureSearch)

July 3, 2013 Houlton, Maine Contact and Information: https://www.facebook.com/MiracleMileRace4Research

Kevin J. Gately Foundation Golf Outing

July 15, 2013 Black Swan Country Club Georgetown, MA Contact: KJGFoundation@gmail.com http://kjgfoundation.org/events.htm

Friends of DBAF Golf Outing & Silent Auction

8th annual Friends of DBA golf Outing Monday, September 15, 2014 Fox Meadow Country Club Medina, Ohio For more information and registration: http://www.friendsofdba.org/

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