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About: Dawn

Recent Posts by Dawn

Clinical Trial Opportunity

We are pleased to share and update information regarding the clinical trial entitled, “Phase I/II, Open-Label Study to Determine Safety of Trifluoperazine (TFP) in Adults with Red Blood Cell Transfusion-Dependent Diamond Blackfan Anemia.” The Feinstein Institutes for Medical Research and Cohen Children’s Medical Center in NYC Announce the Addition of Boston Children’s Hospital as a Study Center for the Clinical  Continue Reading »

New Information & Recommendation Regarding Increased Cancer Risks

In June 2021, a “Special Report” entitled, Colorectal cancer screening and surveillance strategy for patients with Diamond Blackfan anemia: Preliminary recommendations from the Diamond Blackfan Anemia Registry was published in Pediatric Blood & Cancer. At this time, the abstract is available for free and full access to the article is available only through paid subscriptions or institutional access. In addition  Continue Reading »

COVID-19 & Vaccine Updates from the DBAR

Many thanks to the DBAR team for taking the time to answer our patients’ and families’ questions regarding COVID-19 and the vaccines. We appreciate Dr. Adrianna Vlachos and Dr. Michelle Nash’s efforts to keep us updated and informed. Please note, this is an evolving  situation and new information and developments are continuously unfolding. As always, please consult with your personal  Continue Reading »

Dr. Adrianna Vlachos Answers Your COVID-19 Questions

On Saturday, April 11, the Diamond Blackfan Anemia Foundation (DBAF) welcomed Dr. Adrianna Vlachos, Director of the North American DBA Registry (DBAR), to address COVID-19 concerns of the DBA Community. If you were not able to join, or would like to review the information, the video is available below and also on Facebook and YouTube. Facebook: YouTube: We  Continue Reading »

Camp Sunshine Applications are Available Now!

The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our 12th national family retreat. This retreat will take place during the week of  July 7 – 12, 2019 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine.  Ground transportation is provided by Camp Sunshine to the campus. Camp Sunshine has proven to be an unforgettable experience  Continue Reading »

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