Board Members

Dawn Baumgardner, West Seneca, NY
dbaumgardner@dbafoundation.org

Peter Baumgardner, West Seneca, NY
pbaumgardner@dbafoundation.org

Kathi Vroman, Atlanta, Georgia
kvroman@dbafoundation.org

Rebecca DeGroff, Chicago, Illinois
rbromet@dbafoundation.org

Anita Shier Bruton, Topanga, California
asbruton@dbafoundation.org

Cara Breidster, Indianapolis, Indiana
cbreidster@dbafoundation.org

Carol Mancuso, Cleveland, Ohio
cmancuso@dbafoundation.org

Jacy Downey, Indianola, Iowa
jdowney@dbafoundation.org

Anthony Marchese, Ft. Collins, Colorado
amarchese@dbafoundation.org

Research Director

Steven R. Ellis, Ph.D
DBAF Research Director
Professor
Department of Biochemistry and Molecular Biology
University of Louisville
Louisville, KY

About Us

Alexandre – 9 months

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Nathaniel – 7 years

With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!

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Amelia – 8 years

The DBAF has been a life saver for us! They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.

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Gary & Zac – 30 years, 5 years

Some days are good, others not so good. Please help find a cure for our family.

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Kristin – 25 years

Having DBA has taught me to not give up the fight and to do the best that I can. The DBAF has become more than just a source of friends and knowledge, but a family of support through the bad and the good.

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Pascal – 11 Years

It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.

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Brandy – 27 years

I stand DBA Strong with the help of my family, friends, and DBA friends.

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Natalie – 9 years

I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey

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David – 1 month(now 12 years)

This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.

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