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Tag Archives: Diamond Blackfan Anemia

Camp Sunshine Applications Are Available Now!

The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our 11th national family retreat. This retreat will take place during the week of  July 9 – 14, 2017 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine.  Ground transportation is provided by Camp Sunshine to the campus. Camp Sunshine has proven to be an unforgettable experience  Continue Reading »

DBAF Hosts 14th DBA International Consensus Conference in Atlanta, GA

The 14th Diamond Blackfan Anemia International Consensus Conference was a huge success. It is a privilege to continue the meeting founded and previously sponsored by Marie Arturi and the Daniella Maria Arturi Foundation. The DBA Foundation is grateful for the support of DBA Canada, the Daniella Maria Arturi Foundation, DBA-UK, Captain Courageous (Australia) and the Resource Capital Funds Foundation. The cooperation  Continue Reading »

“Life with DBA” by Laurie Shore, DBA speaker at the 14th DBA International Consensus Conference

When I was diagnosed with Diamond Blackfan Anemia back in 1970, I was lucky enough to have a doctor that knew about DBA and knew what he was dealing with. I was put on a course of treatment and throughout the years, the doctors did what they could. But having DBA was a very isolating experience for my mom and my dad  Continue Reading »

DBAF provides Sponsorship for Conference on Ribosome Synthesis

By: Steven R. Ellis, Ph.D. Dateline: August 21st 2015, Brussels Belgium Ding…………….that’s odd, it is 3:00AM back in the US: who would be e-mailing me now? Ah, it’s Jeff Lipton; who happens to be sitting immediately in front of me listening to a talk at the 10th triennial Conference on Ribosome Synthesis. The e-mail is sent to all members of  Continue Reading »

A Clinician/Researcher’s Perspective… Camp Sunshine 2015

By Vijay G. Sankaran, M.D., Ph.D. As both a pediatric hematologist caring for patients with blood disorders and a scientist working to improve our understanding of the genetic basis of these diseases, I spend a large fraction of my time thinking about Diamond Blackfan anemia (DBA). However, while I have always found DBA to be a fascinating disease to study  Continue Reading »

A Parent’s Perspective… Camp Sunshine 2015

By Casey Sears Wilson It is difficult to summarize an experience that we had no idea would be so impactful. However, I want to take the time to do so in a way that will permit anyone willing to take the time to read this to step into our grateful shoes and also to recognize the many gifted people that  Continue Reading »

DBAF and DBAC Fund Continuing Drug Development Research

The Diamond Blackfan Anemia Foundation (DBAF) and Diamond Blackfan Anemia Canada (DBAC) are joining forces once again to fund Johan Flygare, M.D., Ph.D.’s project entitled, “A novel group of kinase inhibitors for treatment of Diamond Blackfan Anemia.” The goal of this $35,000 project is to develop safer and more potent drugs to treat DBA. Ideally, these drugs would act by  Continue Reading »

Camp Sunshine Applications Are Available Now!

The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our tenth national family retreat. This retreat will take place during the week of  July 12 – 17, 2015 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine.  Ground transportation is provided by Camp Sunshine to the campus. Camp Sunshine has proven to be an unforgettable experience  Continue Reading »

DBAF Funds Our “Indispensable Steve”

The Diamond Blackfan Anemia Foundation (DBAF)  is pleased to support the hard work and research efforts of Steven R. Ellis, Ph.D. at the University of Louisville. Dr. Steve Ellis’ professional and personal commitment to DBA is immeasurable and deeply appreciated. Not only is Steve our dedicated (and unpaid) Research Director, who is working tirelessly behind the scenes, he also writes the DBAF’s e-newsletter  Continue Reading »

DBAF & DBA-UK Fund Another Researcher New to the DBA Field

The Diamond Blackfan Anemia Foundation (DBAF), in collaboration with DBA-UK, is pleased to announce funding for a project entitled, “Ribosome biogenesis, cellular signaling pathways and Diamond Blackfan anemia.” A $41,810 grant was awarded to Nicholas James Watkins, Ph.D, a senior lecturer in the Institute for Cellular and Molecular Biosciences at the University of Newcastle upon Tyne in the United Kingdom.  Continue Reading »