Skip to Content

for patients…for families…for research

Latest News & Events

Posted on: September 13, 2014

DBA Sweatshirt Available

DBA Awareness Sweatshirts are available for a very limited time. Stay warm and cozy this winter in your DBA hoodie. Many thanks to David and Brandi Voltz of Bonaire, GA for initiating this fundraiser benefiting the DBA Foundation. Available in youth and adult sizes. Start your holiday shopping! Don’t miss out, order yours today! Thank you for your continued support.  Continue Reading » Posted in: Spotlight Stories
Posted on: September 13, 2014

“DBA: Building Global Bridges” Euro-DBA consortium

ANNOUNCEMENT: “DBA: Building Global Bridges”: An interdisciplinary symposium to facilitate networking between clinicians, scientists, and patients worldwide. An international meeting on Diamond-Blackfan anemia (DBA), a rare inherited blood disease will take place at the Division of Pediatrics, University of Freiburg in Germany, on September 19-20, 2014. “DBA: Building Global Bridges” is an interdisciplinary symposium established under the umbrella of the ERARE-funded  Continue Reading » Posted in: Misc, News, Spotlight Stories, Upcoming Events
Posted on: August 31, 2014

DBAF & DBAC Fund Drug Screening Project

The Diamond Blackfan Anemia Foundation (DBAF), in partnership with DBA Canada (DBAC), is proud to provide a $25,000 grant to Dr. David Bodine for his project, Assay Development and Preliminary Screening of Small Molecules to Increase Ribosomal Protein Levels. David Bodine, PhD, Senior Investigator and Chief, Genetics and Molecular Biology Branch Head, Hematopoiesis Section of the National Human Genome Research Institute explained, “The vast  Continue Reading » Posted in: News, Research
Posted on: August 28, 2014

DBAF Board Member Appointed As Reviewer

Congress has again made funds available to the Department of Defense (DOD) for the Bone Marrow Failure Research Program (BMFRP). The DOD, in turn, is making funds available to scientists around the world with the vision of understanding and curing bone marrow failure diseases. Researchers apply to DOD for support of their research and for research training by submitting an  Continue Reading » Posted in: Families in the News, News, Spotlight Stories
Posted on: August 6, 2014

UPDATE on Dr. Lodish’s Project DBAF and DBAC Provide $95,000

In April 2014 when the DBAF awarded Dr. Harvey Lodish $21,281, the intent was to fill a gap for a few months until Dr. Lodish received government money. Unfortunately, Dr. Lodish was notified that the Telemedicine & Advanced Technology Research Center program had been reorganized and discontinued due to lack of available funding from Congress, leaving him with no funds to  Continue Reading » Posted in: News, Research, Spotlight Stories
Posted on: June 29, 2014

DBAF Funds Another Research Project

The Diamond Blackfan Anemia Foundation is proud to support the very important work of Vijay G. Sankaran, M.D., Ph.D. of Boston Children’s Hospital. The DBAF has provided $36,000 to fund Dr. Sankaran’s research project entitled, Defining GATA1 Transcriptional Alterations in Diamond-Blackfan Anemia. In addition to his clinical responsibilities, Dr. Sankaran is an outstanding investigator and was a leader in the  Continue Reading » Posted in: Misc, News, Research, Spotlight Stories
Posted on: May 27, 2014

DBAF Funds New Research

The Diamond Blackfan Anemia Foundation is pleased to announce the funding of another exciting research project. A grant for $35,000 was awarded to Daniel Finley, Ph.D. for his project entitled, “A new mode of ribosome regulation specific to reticulocytes.” Dr. Daniel Finley, a well-established investigator and a professor at Harvard University, is new to the DBA field.  He will be  Continue Reading » Posted in: Misc, News, Research
Posted on: April 29, 2014

DBAF Provides Gap Funding to Keep Project Going

The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce the funding of another important research project. Through the dedication, hard work, and generosity of our families, friends, and supporters, the DBAF was able to award $21,281 to Dr. Harvey Lodish’s project entitled, “High-throughput screening identifies many novel potential therapies for Diamond Blackfan Anemia.”  The esteemed Dr. Lodish provided the  Continue Reading » Posted in: News, Research, Spotlight Stories
Posted on: March 28, 2014

Summary of the 2014 International Consensus Conference from DBAF’s Research Director, Steven Ellis, PhD:

The 13th Diamond Blackfan Anemia International Consensus Conference was held March 8th through the 10th at the Ritz-Carlton Hotel in downtown Atlanta, Georgia.  This year’s conference saw a record number of abstracts accepted for presentation as either short talks or posters.  This increased number of abstracts submitted relative to previous years, in part, reflects an increasing number of investigators entering  Continue Reading » Posted in: News, Research, Spotlight Stories