Posted on: June 12, 2013
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
Latest News & Events
Posted on: May 6, 2013
Miracle Mile: Makenna and Maggie’s Race for Research (to benefit DBAF and CureSearch)
July 3, 2013 Houlton, Maine Contact and Information: https://www.facebook.com/MiracleMileRace4Research
Posted on: May 6, 2013
Kevin J. Gately Foundation Golf Outing
July 15, 2013 Black Swan Country Club Georgetown, MA Contact: KJGFoundation@gmail.com http://kjgfoundation.org/events.htm
Posted on: May 6, 2013
Friends of DBAF Golf Outing & Silent Auction
September 7, 2013 Briarwood Golf Club Broadview Heights, OH Contact: Jim & Carol Mancuso c-mancuso@sbcglobal.net
Posted on: May 6, 2013
Congratulations to Stuart H. Orkin, MD
Congratulations to Stuart H. Orkin, MD, chairman of the department of pediatric oncology at Dana-Farber/Children’s Hospital Cancer Center. Dr. Orkin was recently awarded the Jessie Stevenson Kovalenko Medal from the National Academy of Sciences for his pioneering achievements in defining the molecular basis of blood disorders and the mechanisms governing the development of blood stem cells and individual blood lineages. Continue Reading »
Posted on: February 6, 2013
Camp Sunshine Applications Are Available Now!
The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our ninth national family retreat. This retreat will take place during the week of July 21 – 26, 2013 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine. Ground transportation is provided by Camp Sunshine to the campsite. Camp Sunshine has proven to be an unforgettable experience Continue Reading »
Posted on: January 31, 2013
Announcement from the Diamond Blackfan Anemia Registry (DBAR)
The DBAR has noted that many patients with DBA have issues that may be due to the hormone-producing gland (endocrine) system abnormalities, including short stature, thyroid dysfunction, delayed puberty in both boys and girls, and diabetes. We are interested in determining if these problems are due to long-term continuous steroid use, iron overload from transfusion therapy or from DBA itself. Continue Reading »
Posted on: December 20, 2012
ASH 2012 Was A Success!
The Diamond Blackfan Anemia Foundation (DBAF) proudly represented DBA at the 54th American Society of Hematology (ASH) Annual Meeting and Exposition held in Atlanta, GA from Dec. 8 – 11, 2012. The event was attended by over 20,000 worldwide hematologists/researchers and visitors to our booth received information regarding DBA clinical care, patient opportunities, and research. The DBAF is pleased to Continue Reading »
Posted on: December 6, 2012
The DBAF Welcomes a New Board Member
The Diamond Blackfan Anemia Foundation (DBAF) would like to announce the addition of Anthony Marchese to the Board of Directors. Anthony brings to the Board a wealth of professional experience, as well as the passion of a father dedicated to bettering the health and well-being of his child… and yours. We are excited to capitalize on Anthony’s unique skills to Continue Reading »
Posted on: November 29, 2012
