Where to Get Support

Phone Numbers to call for Support

The DBA Foundation encourages our families to connect with us and learn more about how we can assist you. We welcome your calls and/or emails. Whether you are newly diagnosed or have been dealing with DBA for a long time, please contact us. We’d love to hear from you! Dawn Baumgardner can be reached at 1-716-674-2818 (Eastern time) or by emailing DBAFoundation@juno.com.

DBA nurse hotline at: 1-877-DBA-NURSE 1-877-322-6877. (Eastern Time)

Web-based Support Groups

Blackfan Anemia, email support group

Blackfan@yahoogroups.com
An e-mail server that allows you to send one e-mail that automatically gets distributed to everyone subscribed to the list. This is a semi-moderated website and e-mail group for DBA parents, families, and patients only. To subscribe, e-mail: blackfan-subscribe@yahoogroups.com, or go to the website at: http://health.groups.yahoo.com/group/blackfan/

DBA21

DBA21@yahoogroups.com
This is a semi-moderated website and e-mail group for adult patients only. To subscribe, e-mail: dba21-subscribe@yahoogroups.com or go to the website at: http://health.groups.yahoo.com/group/dba21/

CaringBridge

www.caringbridge.org
This is a site for free, personalized websites that support and connect loved ones during critical illness, treatment and recovery. You can read about others and their stories and/or create your own site.

Facebook

www.facebook.com
To “Like” the Diamond Blackfan Anemia Foundation on Facebook click here.
To join “DBA Family Group” on Facebook click here.
To join “Fundraising for Diamond Blackfan Anemia” click here.

Twitter

http://twitter.com/DBAFoundation
Do you twitter? If so, follow us and keep up to date on Diamond Blackfan Anemia tweets.

Support Services

Camp Sunshine

www.campsunshine.org
Camp Sunshine provides respite, support, joy and hope to children with life-threatening illnesses and their immediate families through various stages of a child’s illness. The year-round program is free of charge to all families, and includes 24-hour onsite medical and psychosocial support. Main Number: 1-207-655-3800. (Eastern Time)