Thanks to the support of our famiies and friends we were able to fund another worthwhile DBA research project. Dr. David M. Bodine from the NIH is being funded for his research to create and analyze mouse models for some of the mutations that cause Diamond-Blackfan Anemia (DBA). An animal model of DBA will allow an in depth analysis of the defect(s) caused by each of the DBA mutations in untreated animals, allowing the mechanism of the disease to be understood. Once the mechanism has been identified, the effectiveness of conventional therapies can be evaluated and novel therapies designed to target the specific defect can be developed. The mouse model created will be distributed to the DBA community for analysis and the testing and development of therapies for DBA.
Brooke – 7 years
Raegan – 4 years
Thankfully, our sweet girl functions very well with a low blood count. We couldn’t feel more blessed. There is hope!
Michael & Andrew – 13 years
Having twin boys with DBA makes you appreciate everything in life more on a daily basis.
Maggie – 4 years
It’s not fun, but I am a tough cookie.
Seth – 4 years
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
Nicholas – 18 years
DBA has taught us many things – Never give up – Be grateful for the strength to fight the fight and always cherish the arms we rest upon for support.
Carole – 16 years
Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.
Dean – 11 years
DBA is hard but it’s my child’s life. I have to teach him how to live life with it. I will advocate and help find a cure. The DBAF is helping us improve his life.
Sam – 6 years
Future ribosomal protein researcher…he just doesn’t know it yet.
Jensen – 4 years
Living with DBA is challenging and confusing at times but with the DBAF by your side their information and guidance is PRICELESS.