Through the coordination of international experts in DBA at the annual International Consensus Conference (ICC) sponsored by the Daniella Maria Arturi Foundation and Co-sponsored by the Diamond Blackfan Anemia Foundation we share with you this Clinical Care Consensus Document, which has been published in the British Journal of Haematology and offers the latest opinions on how to diagnose and manage the care of patients with DBA.
Jim – 35 years old
Finn – 5 years
Lydia – 6 years
Lily – 10 years
Lily loves everyday she has, especially the ones she’s not in the hospital. Lily is the strongest little girl I know, my hero.
Corey & Tessa Ann – 27 years & 10 months
Living everyday to fight DBA
Nathaniel – 7 years
With something so rare, our biggest fear was that our son would battle DBA alone, he never does. Thank you DBA Foundation!
Ty – 16 years
It is the tough things I have gone through with DBA that has made me the man I am.
Kendra – 34 years
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
Kellan – 22 months
Our son has truly changed our perspective on everything.
David – 1 month(now 12 years)
This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.