Living with DBA is the hardest, yet most fulfilling, aspect of our lives. Audrey is the absolute love of our lives and we are thankful everyday for her.
Posted on: June 12, 2013 Dear DBA Patients and Families: We are pleased to announce the opening of: “The Use of Novel Therapies to Reconstitute Blood Cell Production and Promote Organ Performance, using Bone Marrow Failure as a Model: A Pilot, Phase II Study of the Amino Acid Leucine in the Treatment of Patients with Transfusion-Dependent Diamond Blackfan Anemia” Diamond Blackfan Anemia (DBA) is a Continue Reading »
Posted on: February 6, 2013 The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our ninth national family retreat. This retreat will take place during the week of July 21 – 26, 2013 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine. Ground transportation is provided by Camp Sunshine to the campsite. Camp Sunshine has proven to be an unforgettable experience Continue Reading »
Posted on: January 31, 2013 The DBAR has noted that many patients with DBA have issues that may be due to the hormone-producing gland (endocrine) system abnormalities, including short stature, thyroid dysfunction, delayed puberty in both boys and girls, and diabetes. We are interested in determining if these problems are due to long-term continuous steroid use, iron overload from transfusion therapy or from DBA itself. Continue Reading »
Posted on: December 20, 2012 The Diamond Blackfan Anemia Foundation (DBAF) proudly represented DBA at the 54th American Society of Hematology (ASH) Annual Meeting and Exposition held in Atlanta, GA from Dec. 8 – 11, 2012. The event was attended by over 20,000 worldwide hematologists/researchers and visitors to our booth received information regarding DBA clinical care, patient opportunities, and research. The DBAF is pleased to Continue Reading »