Posted on: June 12, 2013
Though in our hearts we desire to be free from DBA, we have learned patience, love, trust, perseverance, compassion, courage, and to cry.
News
Posted on: May 6, 2013
Congratulations to Stuart H. Orkin, MD
Congratulations to Stuart H. Orkin, MD, chairman of the department of pediatric oncology at Dana-Farber/Children’s Hospital Cancer Center. Dr. Orkin was recently awarded the Jessie Stevenson Kovalenko Medal from the National Academy of Sciences for his pioneering achievements in defining the molecular basis of blood disorders and the mechanisms governing the development of blood stem cells and individual blood lineages. Continue Reading »
Posted on: February 6, 2013
Camp Sunshine Applications Are Available Now!
The Diamond Blackfan Anemia Foundation (DBAF) is proud to announce our ninth national family retreat. This retreat will take place during the week of July 21 – 26, 2013 at Camp Sunshine, which is located at Lake Sebago, Maine. Air carriers fly into Portland, Maine. Ground transportation is provided by Camp Sunshine to the campsite. Camp Sunshine has proven to be an unforgettable experience Continue Reading »
Posted on: January 31, 2013
Announcement from the Diamond Blackfan Anemia Registry (DBAR)
The DBAR has noted that many patients with DBA have issues that may be due to the hormone-producing gland (endocrine) system abnormalities, including short stature, thyroid dysfunction, delayed puberty in both boys and girls, and diabetes. We are interested in determining if these problems are due to long-term continuous steroid use, iron overload from transfusion therapy or from DBA itself. Continue Reading »
Posted on: December 20, 2012
ASH 2012 Was A Success!
The Diamond Blackfan Anemia Foundation (DBAF) proudly represented DBA at the 54th American Society of Hematology (ASH) Annual Meeting and Exposition held in Atlanta, GA from Dec. 8 – 11, 2012. The event was attended by over 20,000 worldwide hematologists/researchers and visitors to our booth received information regarding DBA clinical care, patient opportunities, and research. The DBAF is pleased to Continue Reading »
Posted on: December 6, 2012
The DBAF Welcomes a New Board Member
The Diamond Blackfan Anemia Foundation (DBAF) would like to announce the addition of Anthony Marchese to the Board of Directors. Anthony brings to the Board a wealth of professional experience, as well as the passion of a father dedicated to bettering the health and well-being of his child… and yours. We are excited to capitalize on Anthony’s unique skills to Continue Reading »
Posted on: November 29, 2012
DBAF Wins $100,000 Grant from Chase Community Giving Program
And the winner of the last $100,000 spot in the Chase Community Giving Program is…. overcoming a deficit of 1617 votes in the last 12 hours is…. couldn’t have done it without their amazing families and friends is… the very humble and grateful … Diamond Blackfan Anemia Foundation! At 7:00pm we took the lead by 48 votes. We worked tirelessly Continue Reading »
Posted on: October 15, 2012
KJG Golf Outing
KJG Golf Outing October 15, 2012 9:00am Shotgun Start Black Swan Country Club Georgetown, MA Contact: Sally Thompson Gately KJGFoundation@gmail.com For more information, go to www.kjgfoundation.org Many Thanks to the Gatelys!
Posted on: August 29, 2012
Thanks to YOU…We Did it Again!
DBAF Funds More Research and a Research-rich Conference The DBA Foundation (DBAF) is proud to announce the funding of Dr. Fredrick Goldman’s research project entitled, Toward a cure for DBA: creation of patient-specific gene corrected hematopoietic stem cells using induced pluripotent stem cell technology. We are pleased to fund this exciting project that is on the cutting edge of research and has Continue Reading »
Posted on: March 20, 2012
