The DBAF has been a life saver for us! They’ve supplied us with the knowledge and the resources to fight off anything DBA might throw at us.
Amelia – 8 years
Peyton – 6 years
I cheer for a cure for DBA!
David – 1 month(now 12 years)
This is David at 1 month old weighing almost 2 pounds. DBA changed our paths in life, but I will ALWAYS be there to hold his hand for he holds my heart.
Jack – 3 years
DBA has forever changed our lives, but we will persevere until we find a cure.
Kendra – 34 years
With out the DBAF I would not be connected to others that have Diamond Blackfan Anemia. The DBAF has saved my life by educating me on what I need to do to combat this rare illness.
Finn – 5 years
Pascal – 11 Years
It has been seven years since DBA became part of our vocabulary. Our son’s diagnosis brought confusion, apprehension and despair. The discovery of DBAF is a stroke of serendipity. While even more tears were shed, these are now mingled with knowledge, understanding and, more significantly, hope. It will be through research that our son will be able to secure a brighter future.
Caitlyn – 9 years
DBA has affected our lives in ways we could have never imagined. It has introduced us to the most amazing people – from the dedicated doctors to the wonderful families who are also dealing with DBA. They all exemplify the power of human spirit and are family.
Diana – 28 years
I will not let DBA define me, I will let it strengthen me.
Natalie – 9 years
I am here. I am in the present tense. I’m not always here, and sometimes here is a very difficult place. Sometimes it is a labyrinth, or a Minotaur, or a rope I can neither let go of nor follow. It’s hard to find the right words, but I guess I would say that it’s something like feeling the floor. And that it is my privilege to feel it. -Meg Howrey