Families in the News
Global Genes Announces Actors, Pop Stars, and Special Performances For the Fifth Annual Tribute to Champions of Hope
Audrey and Diamond Blackfan Anemia are headliners at this year’s 5th Annual Tribute to Champions of Hope! Shine on, Audrey, Shine on! http://www.prnewswire.com/…/global-genes-announces…
Read More“Life with DBA” by Laurie Shore, DBA speaker at the 14th DBA International Consensus Conference
When I was diagnosed with Diamond Blackfan Anemia back in 1970, I was lucky enough to have a doctor that knew about DBA and knew what he was dealing with. I…
Read MoreWelcome and thank you. Christopher Vroman’s Story shared at the 14th DBA International Consensus Conference
It means more than you could ever imagine to myself, my brother and to the rest of my family that you have come here to collaborate with great minds in…
Read MoreSelena Gomez Adorably Dances With 7-Year-Old Audrey Nethery, Who is Battling Rare Disease
Audrey and Selena – We love you both like a love song, baby! http://www.etonline.com/…/191737_selena_gomez_adorably…/
Read MoreAudrey Nethery on Rachel Ray
With thanks to Audrey’s dad, here is the entire segment of two of our favorite young ladies… Audrey and Rachael. Thank you Audrey for your indomitable spirit and for making…
Read MoreDBAF Board Member Appointed As Reviewer
Congress has again made funds available to the Department of Defense (DOD) for the Bone Marrow Failure Research Program (BMFRP). The DOD, in turn, is making funds available to scientists…
Read MoreDr. Jeffrey Lipton Honored at National Cancer Center’s 60th Anniversary Gala and Nobility in Science Award Presentation
Please join us in congratulating one of DBA’s true heroes, Jeffrey M. Lipton, MD, PhD, Director, Hematology/Oncology and Stem Cell Transplantation at Cohen Children’s Medical Center of New York. On…
Read MoreFundraiser will support bone-marrow transplant for 5-year-old
As part of the annual April Fool’s pancake breakfast at Tremont Center on Saturday, businesses and residents will be helping out a serious cause — helping to fund a bone-marrow…
Read MoreStrongsville Teen Lives with Rare Disease.
Strongsville Patch. August 29,2011, by Gina Ragone. Click here to read the full article.
Read MoreMystery Diagnosis – Kylie Monica’s Miracle
Oprah Winfrey Network. Thank you Monicas for sharing your story and helping to spread the word about DBA!
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