Sometimes I feel like the odd one out, restricted by DBA. I just have to keep reminding myself that God wouldn’t bless me with this challenge if He didn’t think I could handle it. I don’t let DBA define me, I try to defy DBA.
Posted on: August 26, 2016 When I was diagnosed with Diamond Blackfan Anemia back in 1970, I was lucky enough to have a doctor that knew about DBA and knew what he was dealing with. I was put on a course of treatment and throughout the years, the doctors did what they could. But having DBA was a very isolating experience for my mom and my dad Continue Reading »
Posted on: August 26, 2016
Posted on: August 28, 2014 Congress has again made funds available to the Department of Defense (DOD) for the Bone Marrow Failure Research Program (BMFRP). The DOD, in turn, is making funds available to scientists around the world with the vision of understanding and curing bone marrow failure diseases. Researchers apply to DOD for support of their research and for research training by submitting an Continue Reading »
Posted on: June 12, 2013
Posted on: March 28, 2012 As part of the annual April Fool’s pancake breakfast at Tremont Center on Saturday, businesses and residents will be helping out a serious cause — helping to fund a bone-marrow transplant for 5-year-old Fred Drew. Click here to read the full article.
Posted on: August 29, 2011 Strongsville Patch. August 29,2011, by Gina Ragone. Click here to read the full article.
Posted on: February 2, 2011 Oprah Winfrey Network. Thank you Monicas for sharing your story and helping to spread the word about DBA!
Posted on: February 2, 2011
Posted on: January 28, 2011 The Item, The Banner. Click here to read the full article.
Posted on: July 16, 2010 WCSH6 News. Portland, Maine. Click here to read the full article.