About the DBA Foundation
Fighting to Find the Cause and Cure for Diamond Blackfan Anemia
The Diamond Blackfan Anemia Foundation, Inc. (DBAF), founded in 1994, has adopted the following mission statement: “to collectively and actively generate funds for the charitable and scientific purpose of furthering, by clinical study, laboratory research, publication and teaching, the knowledge of the disorder known as Diamond Blackfan Anemia (DBA). Our intentions are to share this knowledge, to inform, to lend support, and to communicate with all families of DBA patients.”
The DBAF is a 501(c)(3) not-for-profit corporation registered with the Charities Bureau of New York State Department of Law, 120 Broadway, New York, New York 10271.
The DBAF supports itself solely through donations and our families’ fundraisers. The DBAF funds medical research projects which directly or indirectly benefit DBA patients and which are approved by the DBAF’s medical/scientific advisory board comprised of medical doctors and scientists. The DBAF organizes meetings which bring together DBA patients, families, and world-renowned physicians. The DBAF provides informational literature to patients, DBA family members, health care professionals and other interested parties. The DBAF networks DBA families throughout the United States, Canada, and worldwide. The DBAF publishes a semi-annual newsletter containing personal DBA stories, DBA clinical trial information, current research, and DBA activities.
For additional information on DBA or the DBAF, please contact:
Diamond Blackfan Anemia Foundation, Inc.
P.O. Box 1092
West Seneca, New York 14224
Phone: 1-716-674-2818 (Eastern Time)